SYA7933: Death and Dying in Old Age (Section 35CH-22716)

Fall 2019

Class: Fridays 1:55-4:55 p.m. in 108 Ustler Hall

 

Instructor:           Monika Ardelt, Ph.D.                   

Office:                   3350 Turlington

Phone:                  352-294-7166

E-mail:                  Ardelt@ufl.edu

Office Hours:      Tuesday and Wednesday 1:55-2:45 p.m., and by appointment

WWW:                  http://users.clas.ufl.edu/ardelt/

 

Course Content

 

What constitutes dying well for older persons, and how can families and institutions make the dying experience less painful and more emotionally rewarding for the dying and those close to them? I define dying well as the maintenance of psychological well-being, even under adverse circumstances. Based on a theoretical orientation that assumes life-long psychosocial development and potential for psychological growth, the dying experience can be considered the last developmental milestone of a person's life course. However, dying well in old age is still a relatively neglected topic. Unfortunately, dying well also appears to be the exception rather than the norm. Too many older people spend their last days or hours of their lives in places, such as hospitals or nursing homes, that may not spare any expenses to keep them alive but lack the human contact and compassion to facilitate a "good" death.

In this course, we will explore the issues surrounding dying well from multiple perspectives, including sociology, psychology, biology, medical sciences, ethics, history, spirituality/religion, and economics. In particular, we will start by studying dying well from a developmental or life course perspective. Then we will discuss the medical, psychological, social, spiritual/religious, economic, ethical, and legal aspects of death and dying. We will end the course by considering cultural variations in end-of-life issues, examining the grieving process for survivors, and discussing the question of life after death.

 

Required Reading

Gaughen, Shasta. 2003. Coping with Death. Contemporary Issues Companion. San Diego, CA: Greenhaven Press.

Nakaya, Andrea C. 2005. Terminal Illness. Opposing Viewpoints. San Diego, CA: Greenhaven Press.

Ostaseski, Frank. 2017. The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

All additional readings are available in the "Ardelt-Death and Dying in Old Age" folder on the S-drive. 
  

Requirements

 

Readings and Class Participation: An interaction between students and instructor will be the basis of most classes. Hence, it is absolutely essential that you read the assigned material in advance so that you are able to participate in class discussions.

To prevent the instructor from doing all of the talking during class, each student will serve as the discussion leader for two class sessions, which will be rewarded with 10% of the final grade (5% for each class session). There might be more than one discussion leader for a given topic. As discussion leaders, students will have the privilege to ask their most "burning" questions about the class topic first and add information to the discussion from 1 recent article or book chapter that is not listed in the class schedule outline. To receive full credit, students need to email the instructor the complete reference and an electronic copy of the additional article or book chapter two days before class.

 

Attendance: Attendance of class is required because non-attendance by several students at a time will destroy the dynamic of the class. Students who have to miss all or part of a class session must inform the instructor in advance about their absence.

 

Service Learning Project: To facilitate learning and to understand the material from an experiential perspective, students are asked to volunteer for 2-4 hours each week (after receiving the appropriate training) either at Haven (hospice of North Central Florida, http://beyourhaven.org/Volunteer) or at one of the nursing homes in Gainesville (see http://web.clas.ufl.edu/users/ardelt/List_of_Nursing_Homes_in_Gainesville.htm). As their volunteering experience, students should assist and/or be a companion to older residents who are near the end of their lives.

To volunteer with Haven, you will need to complete the Haven volunteer application forms either online or email the forms to Susie Finfrock sjfinfrock@beyourhaven.org, volunteer coordinator at Haven, directly. You also need to attend a volunteer orientation session, specifically for our class, on Saturday, September 7 from 9 a.m. to 3 p.m. at the E.T. York Hospice Care Center in Gainesville (http://beyourhaven.org/stores/gainesville-e-t-york-care-center-and-corporate-offices/). If you are absolutely unable to make it to the training session, you can attend the regular Haven volunteer training session on September 21. In exchange for attending the volunteer training, there will be no class on October 11 and November 15.

 

Reflection Journal: For each class, you will write a minimum of 1000 words for a reflection "journal." Reflections should contain a heading that identifies the student and the class topic. To receive credit for the reflection journal entries, you need to submit them by 11 a.m. on Friday before the class for which the entries were written, so that I have time to compile a list of questions for class discussions. Each set of reflection journal entries is worth 3 points for a total of 33% of your final grade.

Before you start volunteering, the reflection journal entries will consist of one or more questions based on the assigned readings and possible answers to those questions or issues that should be considered when attempting to answer those questions. Reflect on how the readings might be relevant for your personal or professional life.

After you started volunteering, the reflection journal entries will also start with one or more questions based on the assigned readings and possible answers to those questions followed by a detailed description of the service learning experience during the past week. Try to analyze the experience with regard to the current or past class topics and assigned readings. End by reflecting on the relevance of the service learning experience and/or the course content for your personal or professional life. For each set of reflection journal entry, use the following subheadings: (a) current question(s), (b) service learning experience from <date(s)>, (c) analysis of the service learning experience, and (d) application to personal or professional life.

The following are guidelines for writing the description of your service learning experience:

1.       Write down the date, time, and location of the service learning experience.

2.       Describe the environment (does not need to be repeated if the environment does not change in subsequent visits).

3.       Describe all persons in detail, i.e., age, gender, race, physical appearance, etc. (does not need to be repeated if the same persons are encountered in subsequent visits).

4.       Make sure that all persons remain anonymous, i.e., use only pseudonyms as names.

5.       Describe what people are doing when you arrive. Give a physical description of the people, clothes, etc.

6.       Give your impression of the resident(s): mental alertness, physical demeanor, etc.

7.       Describe your service learning experience in chronological order and in as much detail as possible.

8.       Include any information that you think would be noteworthy.

 

Reflection journal entries for each class are to be submitted via e-Learning in Canvas after the file has been saved as a Word document (*.doc or *.docx). For general information about e-Learning in Canvas visit https://connect.ufl.edu/it/wiki/Pages/e-Learning%20FAQs%20for%20Students.aspx.

 

To submit your MS Word file in e-Learning, go to the University of Florida e-Learning Support Services home page at http://elearning.ufl.edu (bookmark this page). To sign into e-Learning in Canvas, click on the "Log in to e-Learning" link using your assigned Gatorlink username and password. If you do not have a Gatorlink ID or if you cannot remember your Gatorlink login information, go to the Gatorlink website at <http://gatorlink.ufl.edu> or to the CIRCA Help Desk in the Hub (phone: 392-HELP) for assistance.

 

After you have successfully logged into e-Learning, click on our class folder. For further assistance please contact e-Learning Support Services at (352) 392-4357 or email: learning-support@ufl.edu

 

To submit a Q & A entry via e-Learning, navigate to our course and click on Assignments in the menubar. Assignments can be displayed in the order they are due or by type. Do the following to submit a Q & A entry:

Step 1: Click the Q & A entry you want to submit.

Step 2: Click on the "Submit Assignment" link.

Step 3: To upload your file, click the Choose File button. Browse for a file to upload.

Step 4: Check "This assignment submission is my own, original work"

Step 5: Click Submit Assignment when you are done. After you have submitted your work, you will see information in the Sidebar about your submission. If you choose, you may resubmit another version of your assignment using the Re-submit Assignment link.

 

To view your grades, click on Grades in the menubar.

 

Term Paper: There will be one term paper that is due on December 12 at 10 a.m. The term paper should be based on your service learning project and your reflection journal. It should be between 15 and 25 pages long. You will present a summary of your term paper during the final exam time on December 12 between 10 a.m. and noon. Detailed instructions for the term paper will be distributed in class.

 

Cheating: I define copying parts or all of an author's or another student's work, allowing another student to copy parts or all of your work, or simply duplicating parts or all of your reflection journal entries as cheating.

WARNING: Students who are caught cheating in this way will fail the class immediately!

 

UF students are bound by The Honor Pledge which states, "We, the members of the University of Florida community, pledge to hold ourselves and our peers to the highest standards of honor and integrity by abiding by the Honor Code. On all work submitted for credit by students at the University of Florida, the following pledge is either required or implied: "On my honor, I have neither given nor received unauthorized aid in doing this assignment." The Honor Code (http://www.dso.ufl.edu/sccr/process/student-conduct-honor-code/) specifies a number of behaviors that are in violation of this code and the possible sanctions.

 

Exams: There are no exams in this course. J

 

Accommodations for Students with Disabilities: Students with disabilities requesting accommodations should first register with the Disability Resource Center (352-392-8565, www.dso.ufl.edu/drc/) by providing appropriate documentation. Once registered, students will receive an accommodation letter which must be presented to the instructor when requesting accommodations. Students with disabilities should follow this procedure as early as possible in the semester.

 

Grading

Requirement

Discussion leader

Reflection journal

Term paper

Presentation of paper

% of Final Grade

                                10%

                                33%

                                47%

                                10%

 

I will not grade on a curve, i.e. your grade will depend on your absolute performance, not your performance compared to other students.

 

The points that you will earn can be translated into letter-grades as follows:

 

92.5 - 100.0 = A

90.0 - <92.5 = A-

87.5 - <90.0 = B+

82.5 - <87.5 = B

80.0 - <82.5 = B-

77.5 - <80.0 = C+

72.5 - <77.5 = C

70.0 - <72.5 = C-

67.5 - <70.0 = D+

62.5 - <67.5 = D

60.0 - <62.5 = D-

             <60.0 = E

 

For information on current UF grading policies for assigning grade points, see https://catalog.ufl.edu/ugrad/current/regulations/info/grades.aspx

 

Requirements for class attendance and make-up exams, assignments, and other work in this course are consistent with university policies that can be found in the online catalog at: https://catalog.ufl.edu/ugrad/current/regulations/info/attendance.aspx

 

Students are expected to provide professional and respectful feedback on the quality of instruction in this course by completing course evaluations online via GatorEvals. Guidance on how to give feedback in a professional and respectful manner is available at https://gatorevals.aa.ufl.edu/students/. Students will be notified when the evaluation period opens, and can complete evaluations through the email they receive from GatorEvals, in their Canvas course menu under GatorEvals, or via https://ufl.bluera.com/ufl/. Summaries of course evaluation results are available to students at https://gatorevals.aa.ufl.edu/public-results/.

 

Help with Writing: If you need help with writing, you can visit the University Writing Center (https://writing.ufl.edu/faculty/getting-help-for-your-students/) in 302 Tigert Hall.

 

Important phone numbers and contact information

University counseling services and mental health services: 392-1575 or https://counseling.ufl.edu/.

University Police Department: 392-1111 or 9-1-1 for emergencies

 

http://www.aa.ufl.edu/Data/Sites/18/media/faculty_update/documents/2016/umatter.pngYour well-being is important to the University of Florida. The U Matter, We Care initiative is committed to creating a culture of care on our campus by encouraging members of our community to look out for one another and to reach out for help if a member of our community is in need. If you or a friend is in distress, please contact umatter@ufl.edu so that the U Matter, We Care Team can reach out to the student in distress. A nighttime and weekend crisis counselor is available by phone at 352-392-1575. The U Matter, We Care Team can help connect students to the many other helping resources available including, but not limited to, Victim Advocates, Housing staff, and the Counseling and Wellness Center. Please remember that asking for help is a sign of strength.

 

Tentative Class Schedule

08/23 - Introduction: Preparing to Become a Compassionate Companion

 

08/30 - Living with Death and Dying

Coping with death: pp. 15-20

Tolstoy, Leo. The Death of Ivan Ilych.

Rolheiser, Ron. 2005. "Life's Key Question." Good News 12, Oct. 15-16.

Chinen, Allen B. 1995. "The Mortal King." Pp. 335-36 in The Path Ahead. Readings in Death and Dying, edited by L. A. DeSpelder and A. L. Strickland. Mountain View, CA: Mayfield.

Attig, Thomas. 1995. "Coping With Mortality: An Essay on Self-Mourning." Pp. 337-41 in The Path Ahead. Readings in Death and Dying, edited by L. A. DeSpelder and A. L. Strickland. Mountain View, CA: Mayfield.

Killilea, Alfred G. 1995. "The Politics of Being Mortal." Pp. 342-47 in The Path Ahead. Readings in Death and Dying, edited by L. A. DeSpelder and A. L. Strickland. Mountain View, CA: Mayfield.

Bertman, Sandra L. 1995. "Bearing the Unbearable: From Loss, the Gain." Pp. 348-54 in The Path Ahead. Readings in Death and Dying, edited by L. A. DeSpelder and A. L. Strickland. Mountain View, CA: Mayfield.

Ostaseski, Frank. 2017. "Introduction: The Transformative Power of Death." Pp. 1-14 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Ostaseski, Frank. 2017. "The First Invitation." Pp. 15-72 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Enck, Graves. 2003. "The Dying Process." Pp. 457-67 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

"How Americans Die:" http://www.bloomberg.com/dataview/2014-04-17/how-americans-die.html

"World Death Rate Holding Steady At 100 Percent." The Onion 31, January 22, 1997.

 

09/06- Biological, Psychosocial, and Spiritual Perspectives of the Dying Process

Biological Perspective

Coping with death: pp. 11-14

Nuland, Sherwin B. 1994. How We Die. Reflections on Life's Final Chapter. New York: Knopf, Chapters 3-5.

Psychosocial Perspective

Kuebler-Ross, Elisabeth. 1969. On Death and Dying. New York: The Macmillan Company, Chapters 11‑12.

Edgley, Charles. 2003. "Dying as Deviance. An Update on the Relationship between Terminal Patients and Medical Settings." Pp. 448-56 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Spiritual Perspective

Kuebler-Ross, Elisabeth. 1999. "The Cocoon and the Butterfly." Pp. 41-76 in The Tunnel and the Light. Essential Insights on Living and Dying, edited by G. Grip. New York: Marlowe & Company, pp. 41-56.

Dass, Ram. 2001. Still Here: Embracing Aging, Changing, and Dying. New York: Riverhead, Chapter 7.

Singh, Kathleen Dowling. 2000. The Grace in Dying: How We Are Transformed Spiritually as We Die. San Francisco, CA: HarperCollins, Chapter 1.


09/13 - Hospice and Palliative Care

Terminal illness: pp. 19-35, 49-57, 78-90, 102-112

Coping with death: pp. 51-54, 114-125

Ostaseski, Frank. 2017. "The Second Invitation." Pp. 73-114 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

NHPCO. 2018. NHPCO Facts and Figures. 2018 Edition. Alexandria, VA: National Hospice and Palliative Care Organization.

Kelley, Amy S. and R. Sean Morrison. 2015. "Palliative Care for the Seriously Ill." New England Journal of Medicine 373(8):747-55.

Byock, Ira R. 1996. "The Nature of Suffering and the Nature of Opportunity at the End of Life." Clinics in Geriatric Medicine 12:237-52.

Connor, Stephen R. 2000. "Hospice Care and the Older Person." Pp. 227-38 in Death Attitudes and the Older Adult. Theories, Concepts, and Applications, edited by A. Tomer. Philadelphia, PA: Brunner-Routledge.

Brabant, Sarah. 2003. "Death in Two Settings. The Acute Care Facility and Hospice." Pp. 475-84 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

 

09/20 - Being with Dying

Terminal illness: pp.115-127, 134-141

Ostaseski, Frank. 2017. "The Third Invitation." Pp. 115-180 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Wray, Elizabeth. 2003. "Learning to Let Go." Alternative Medicine 57, May 2003: 88-126.

Bruce, Anne, and Betty Davies. 2005. "Mindfulness in Hospice Care: Practicing Meditation-in-Action." Qualitative Health Research 15 (10):1329-44.

Steinhauser, Karen E., Elizabeth C. Clipp, Maya McNeilly, Nicholas A. Christakis, Lauren M. McIntyre, and James A. Tulsky. 2000. "In Search of a Good Death: Observations of Patients, Families, and Providers." Annals of Internal Medicine 132 (10):825-32.

Holdsworth, Laura M. 2015. "Bereaved Carers' Accounts of the End of Life and the Role of Care Providers in a 'Good Death': A Qualitative Study." Palliative Medicine 29(9):834-41.

Scarre, Geoffrey. 2012. "Can there be a good death?" Journal of Evaluation in Clinical Practice 18(5):1082-86.

Kovacs, Pamela J. and David P. Fauri. 2003. "Formal and Informal Caregiving at the End of Life." Pp. 502-10 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Mechanic, Michael. 2014. "Interview with Atul Gawande: 'We Have Medicalized Aging, and That Experiment Is Failing Us.'" Mother Jones, Oct. 7, 2014.

Gross, Jane. 2006. "For the Families of the Dying, Coaching as the Hours Wane." The New York Times, May 20, 2006.

Gross, Jane. 2009. "Sisters Face Death with Dignity and Reverence." The New York Times, July 9, 2009.

Fahnestock, Deborah T. 1999. "A Piece of My Mind: Partnership for Good Dying." Journal of the American Medical Association 282:615-16.

Sachs, Greg A. 2000. "A Piece of My Mind: Sometimes Dying Still Stings." Journal of the American Medical Association 284:2423.

 

09/27 - The Role of Religion and Spirituality at the End of Life

Terminal illness: pp. 128-133

Coping with death: pp. 38-43, 108-113

Ostaseski, Frank. 2017. "The Fourth Invitation." Pp. 181-231 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Thibault, Jane. 2003. "How Can Health Care Professionals Meet the Spiritual Needs of Dying Older Patients?" Geriatric Times I:6pp.

Doka, Kenneth J. 1993. "The Spiritual Need of the Dying." Pp. 143-50 in Death and Spirituality, edited by K. J. Doka and J. D. Morgan. Amityville, N.Y.: Baywood.

Morgan, John D. 2003. "Spirituality." Pp. 110-16 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Leming, Michael R. 2003. "Religion and the Mediation of Death Fear." Pp. 117-25 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Landes, Scott D. and Monika Ardelt. 2011. "The Relationship between Spirituality and Death Fear in Aging Adults." Counselling and Spirituality 30(2):87-111.

 

10/04 - Homecoming

 

10/11 - The Cost of Health Care and End-of-Life Care for Older Adults

No face-to-face class, but you are still required to read the assigned material and submit the reflection journal entry on time.

Coping with death: pp. 55-60

Callahan, Daniel. 1990. "Why We Must Set Limits." Pp. 23-36 in A Good Old Age? The Paradox of Setting Limits, edited by P. Homer and M. Holstein. New York: Simon & Schuster.

Holstein, Martha. 1990. "Voices of the Old." Pp. 37-43 in A Good Old Age? The Paradox of Setting Limits, edited by P. Homer and M. Holstein. New York: Simon & Schuster.

Wetle, Terrie and Richard W. Besdine. 1990. "Letting Individuals Decide." Pp. 53-57 in A Good Old Age? The Paradox of Setting Limits, edited by P. Homer and M. Holstein. New York: Simon & Schuster.

Perry, Daniel and Robert N. Butler. 1990. "Aim Not Just for Longer Life, but Expanded 'Health Span'." Pp. 91-94 in A Good Old Age? The Paradox of Setting Limits, edited by P. Homer and M. Holstein. New York: Simon & Schuster.

Somers, Anne R. 1990. "Setting Limits or Promoting Health?" Pp. 101-5 in A Good Old Age? The Paradox of Setting Limits, edited by P. Homer and M. Holstein. New York: Simon & Schuster.

Menzel, Paul T. 1993. "Counting the Costs of Lifesaving Interventions for the Elderly." Pp. 137-49 in Facing Limits. Ethics and Health Care for the Elderly, edited by G. R. Winslow and J. W. Walters. Boulder, CO: Westview Press.

Schneider, Edward L. 1993. "Changing the Debate about Health Care for the Elderly." Pp. 161-74 in Facing Limits. Ethics and Health Care for the Elderly, edited by G. R. Winslow and J. W. Walters. Boulder, CO: Westview Press.

Spielman, Bethany. 1993. "Achieving Equity and Setting Limits: The Importance of Gender." Pp. 177-89 in Facing Limits. Ethics and Health Care for the Elderly, edited by G. R. Winslow and J. W. Walters. Boulder, CO: Westview Press.

Culpepper, Emily Erwin. 1993. "Ageism, Sexism, and Health Care: Why We Need Old Women in Power." Pp. 191-209 in Facing Limits. Ethics and Health Care for the Elderly, edited by G. R. Winslow and J. W. Walters. Boulder, CO: Westview Press.

Winslow, Gerald R. 1993. "Exceptions and the Elderly." Pp. 231-43 in Facing Limits. Ethics and Health Care for the Elderly, edited by G. R. Winslow and J. W. Walters. Boulder, CO: Westview Press.

Holmes, Holly M., Deon Cox Hayley, G. Caleb Alexander, and Greg A. Sachs. 2006. "Reconsidering Medication Appropriateness for Patients Late in Life. Archives of Internal Medicine 166 (6):605-609.

Kaufman, Sharon, R. 2009. "Life-Extending Treatments for the Oldest Patients." The Hastings Center Health Care Cost Monitor, May 26, 2009.

Singer, Peter. 2009. "Why We Must Ration Health Care." The New York Times, July 19, 2009.

Murray, Ken. 2011. "How Doctors Die. It's Not Like the Rest of Us, But It Should Be." Nexus, November 30, 2011.

Brill, Steven. 2013. "Bitter Pill: Why Medical Bills Are Killing Us." Time, February 20, 2013.

Reid, T.R. 2009. "5 Myths about Health Care around the World." Washington Post, August 23, 2009.

 

10/18 - Euthanasia and Physician-Assisted Suicide

Terminal illness: pp. 91-101, 144-188

Coping with death: pp. 126-136

Quill, Timothy E. 1993. "Doctor, I Want to Die. Will You Help Me?" Journal of the American Medical Association 270:870-73.

Quill, Timothy E., Anthony L. Back and Susan D. Block. 2016. "Responding to Patients Requesting Physician-Assisted Death: Physician Involvement at the Very End of Life." JAMA: Journal of the American Medical Association 315:245-46.

Sulmasy, Daniel P., Ilora Finlay, Faith Fitzgerald, Kathleen Foley, Richard Payne and Mark Siegler. 2018. "Physician-Assisted Suicide: Why Neutrality by Organized Medicine Is Neither Neutral nor Appropriate." Journal of General Internal Medicine 33:1394-99.

Muskin, Philip R. 1998. "The Request to Die: Role for a Psychodynamic Perspective on Physician-Assisted Suicide." Journal of the American Medical Association 279:323-28.

Appelbaum, Paul S. 2016. "Physician-Assisted Death for Patients with Mental Disorders-Reasons for Concern." JAMA Psychiatry 73(4):325-26.

Smith, Kathryn A., Theresa A. Harvath, Elizabeth R. Goy and Linda Ganzini. 2015. "Predictors of Pursuit of Physician-Assisted Death." Journal of Pain and Symptom Management 49:555-61.

Gastmans, Chris and Jan De Lepeleire. 2010. "Living to the Bitter End? A Personalist Approach to Euthanasia in Persons with Severe Dementia." Bioethics 24(2):78-86.

Dierickx, Sigrid, Luc Deliens, Joachim Cohen and Kenneth Chambaere. 2017. "Euthanasia for People with Psychiatric Disorders or Dementia in Belgium: Analysis of Officially Reported Cases." BMC Psychiatry 17:1-9.

Osgood, Nancy J. 2000. "Ageism and Elderly Suicide: The Intimate Connection." Pp. 157-73 in Death Attitudes and the Older Adult. Theories, Concepts, and Applications, edited by A. Tomer. Philadelphia, PA: Brunner-Routledge.

Hardwig, John. 1997. "Is There a Duty to Die?" Hastings Center Report 27:34-42.

McNeil, Donald G. Jr. 2003. "First Study on Patients Who Fast to End Lives." The New York Times, July 31, 2003.

Ardelt, Monika. 2003. "Physician-Assisted Death." Pp. 424-34 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

 

10/25 - Legal Preparations for the End-of-Life

Terminal illness: pp. 36-48

Coping with death: pp. 44-50

Five Wishes

Pevey, Carolyn. 2003. "Living Wills and Durable Power of Attorney for Health Care." Pp. 891-98 in Handbook of Death and Dying. Vol. II: The response to death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Glass, Anne P. and Lusine Nahapetyan. 2008. "Discussions by Elders and Adult Children about End-of-Life Preparation and Preferences." Preventing Chronic Disease. Public Health Research, Practice, and Policy 5:8 pp. Retrieved August 18, 2009 (http://www.cdc.gov/pcd/issues/2008/jan/07_0141.htm).

Mattlin, Ben. 2014. "Beware the Rush to Help People Die." Los Angeles Times, July 2, 2014.

Phipps, Etienne, Gala True, Diana Harris, Umi Chong, William Tester, Stephen I. Chavin, and Leonard E. Braitman. 2003. "Approaching the End of Life: Attitudes, Preferences, and Behaviors of African-American and White Patients and Their Family Caregivers. Journal of Clinical Oncology 21 (3):549-54.

Fagerlin, Angela and Carl E. Schneider. 2004. "Enough. The Failure of the Living Will." Hastings Center Report 34:30-42.

Landro, Laura. 2011. "New Efforts to Simplify End-of-Life Care Wishes." The Wall Street Journal, March 15, 2011.

Miller, Robert K. Jr, Jeffrey Rosenfeld, and Stephen J. McNamee. 2003. "The Disposition of Property. Transfers between the Dead and the Living." Pp. 917-25 in Handbook of Death and Dying, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

 

11/01 - Cultural Variations in End-of-Life Issues

Terminal illness: pp. 58-75

Meagher, David K. and Craig P. Bell. 1993. "Perspectives on Death in the Africa-American Community." Pp. 113-30 in Death and Spirituality, edited by K. J. Doka and J. D. Morgan. Amityville, N.Y.: Baywood.

Mouton, Charles P. 2000. "Cultural and Religious Issues for African Americans." Pp. 71-82 in Cultural Issues in End-of-Life Decision Making, edited by K. L. Braun, J. H. Pietsch, and P. L. Blanchette. Thousand Oaks, CA: Sage.

Talamantes, Melissa A., Celina Gomez, and Kathryn L. Braun. 2000. "Advance Directives and End-of-Life Care: The Hispanic Perspective." Pp. 83-100 in Cultural Issues in End-of-Life Decision Making, edited by K. L. Braun, J. H. Pietsch, and P. L. Blanchette. Thousand Oaks, CA: Sage.

Yeo, Gwen and Nancy Hikoyeda. 2000. "Cultural Issues in End-of-Life Decision Making Among Asians and Pacific Islanders in the United States." Pp. 101-25 in Cultural Issues in End-of-Life Decision Making, edited by K. L. Braun, J. H. Pietsch, and P. L. Blanchette. Thousand Oaks, CA: Sage.

Long, Susan Orpett. 2004. "Cultural Scripts for a Good Death in Japan and the United States: Similarities and Differences." Social Science & Medicine 58 (5):913-928.

Krakauer, Eric L., Christopher Crenner, and Ken Fox. 2002. "Barriers to Optimum End-of-Life Care for Minority Patients." Journal of the American Geriatrics Society 50:182-90.

 

11/08 - Grieving

Coping with death: pp. 61-65, 67-72, 80-83, 97-100, 141-147

Ostaseski, Frank. 2017. "The Fifth Invitation." Pp. 233-276 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Doka, Kenneth J. 1993. "The Spiritual Crisis of Bereavement." Pp. 185-93 in Death and Spirituality, edited by K. J. Doka and J. D. Morgan. Amityville, N.Y.: Baywood.

Neimeyer, Robert A. and Louis A. Gamino. 2003. "The Experience of Grief and Bereavement." Pp. 847-54 in Handbook of Death and Dying. Vol. II: The response to death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Rosenblatt, Paul C. 2003. "Bereavement in Cross-Cultural Perspective." Pp. 855-61 in Handbook of Death and Dying. Vol. II: The response to death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Wada, Kaori, and Jeeseon Park. 2009. "Integrating Buddhist Psychology into Grief Counseling. Death Studies 33 (7):657-683.

Nansen, Bjorn, Tamara Kohn, Michael Arnold, Luke van Ryn and Martin Gibbs. 2017. "Social Media in the Funeral Industry: On the Digitization of Grief." Journal of Broadcasting & Electronic Media 61(1):73-89.

"Everything you know about funerals is wrong:" The crusade against commercial death-care: http://youtu.be/wIBkKGPfJ9Q

 

11/15 - No class

No regular class: Work on final papers

 

11/22 - Is There Life after Death?

Coping with death: pp. 21-36

Ostaseski, Frank. 2017. "The Fifth Invitation." Pp. 277-282 in The Five Invitations. Discovering What Death Can Teach Us About Living Fully. New York, NY: Flatiron Books.

Dillon, Jane. 2003. "Reincarnation. The Technology of Death." Pp. 65-76 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Gowan, Donald E. 2003. "Christian Beliefs Concerning Death and Life after Death." Pp. 126-36 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Rodabough, Tillman and Kyle Cole. 2003. "Near-Death Experiences as Secular Eschatology." Pp. 137-47 in Handbook of Death and Dying. Vol. I: The presence of death, edited by C. D. Bryant et al. Thousand Oaks, CA: Sage.

Betty, L. Stafford. 2006. "Are They Hallucinations or Are They Real? The Spirituality of Deathbed and Near-Death Visions." Omega: Journal of Death & Dying 53 (1/2):37-49.

Cassol, Helena, Benoit Petre, Sophie Degrange, Charlotte Martial, Vanessa Charland-Verville, Francois Lallier, Isabelle Bragard, Michele Guillaume and Steven Laureys. 2018. "Qualitative Thematic Analysis of the Phenomenology of near-Death Experiences." PLoS ONE 13:e0193001.

Belanti, John, Mahendra Perera, and Karuppiah Jagadheesan. 2008. "Phenomenology of near-death experiences: A cross-cultural perspective." Transcultural Psychiatry 45(1):121-33.

Kuebler-Ross, Elisabeth. 1999. "Life, Death and Life after Death." Pp. 79-106 in The Tunnel and the Light. Essential Insights on Living and Dying, edited by G. Grip. New York: Marlowe & Company.

Rolheiser, Ron. 2004. "The Law of Karma." February 8, 2004, http://www.ronrolheiser.com/

 

11/29 - Thanksgiving break

 

12/12 from 10 a.m. to noon - Class Presentations of Papers